Tuesday, April 3, 2012

Encouragement for Special Needs Moms

First, let me be honest and say that we've had some very hard months around here lately. Sweet little Baby Girl is having some major issues, and it's taking its toll on all of us. We've also had a couple of official diagnoses for her, which confirmed some things we've suspected for a while. Even though we knew these things in our hearts, it is still a different matter when it's written out in black & white by a doctor. We are going through a process of accepting things, but I'll be honest and say that I waiver between acceptance & trusting God and grief & feeling anger toward God. I am sure that this is common for those of us who have special needs children. I am sharing my heart with you all because I know that I am not alone. I hope to offer encouragement to all of us walking through these kinds of circumstances.

As I stated in my previous blog post, I will not disclose any specifics of a diagnosis on a public website, but I will say that it is developmentally-related. Some days I feel like I can't go on, but then I am reminded that "I can do all things through Christ who strengthens me." (Philippians 4:13) I know that God has a purpose and a plan for Baby Girl, for me, for each individual member of my family, and for all of us collectively as a family. I know that God knew Baby Girl before he formed her in the womb and that all the days of her life were ordained before one of them came to be (Psalm 139). He is at work in ways greater than we can imagine and He is blessing our family with an opportunity to do things that have eternal value, even though it brings suffering in this life. 2 Corinthians 4:17-18 states "17 For our light affliction, which is but for a moment, is working for us a far more exceeding and eternal weight of glory, 18 while we do not look at the things which are seen, but at the things which are not seen. For the things which are seen are temporary, but the things which are not seen are eternal." I will hold to these truths, even when I'm angry, even when I'm feeling despair, no matter what...I will hold to these truths.

Moms, try to look at what your child CAN do, instead of focusing on what he/she CAN'T do. I know it is easier said than done, but I have found something that helps. I have started an encouragement journal. In it I write all the things that Baby Girl does....big, small, whatever...that amaze me. For example, last week I wrote about how Baby Girl counted to eleven, even though I've only officially taught her to count to ten. Somehow she learned that just by listening to people around her! Another entry I wrote is that she let the water out of the bathtub all by herself and said, "Water out." Moms, when these moments happen, take time & write it down! On our hardest days, when all we can see is the difficulty and all we can feel is the pain, it's hard to think about the good things, but if it's written down, then we can read it & be encouraged. So, moms, stand strong and look for the blessings and the opportunities we've been given. God chose you to be your child's mom for a reason. Embrace it!


Rita and John said...

Oh, I'm so sorry to hear you've had a troubling diagnosis about your sweet girl. We'll keep you all in our prayers!

Symasek Family Circus said...

You are amazing. Praying for you guys! I will look to you for encouragement when we get home. :-)

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